Design for patient autonomy
Published: 15 May 2015
Stanford Medicine X is the most talked-about academic medical conference in the world. The “X” symbolizes the infinite possibilities for current and future information technologies to improve health, and encourages thinking beyond numbers and trends. We are convinced that patients today have invaluable knowledge and the power to help change the system to a more patient-centered medical model.
We’ve all heard a lot about patient engagement, but what value is it really providing to patients? Is it really about engagement when in the end, patients don’t care what you call it, they just want the ability to be more autonomous in their care?
We’ll run a Patient Autonomy Workshop for the ePatient track of the conference, along with patient advocacy thought leader Hugo Campos who will co-facilitate the session. By asking ePatients and their communities to give examples of where the healthcare system has failed to give them autonomy, participants in our workshop will build a picture of the current landscape of challenges and opportunities to design for stronger patient autonomy. For the research track of the conference, we’ll present a study on psychosocial influences on cancer that was performed by design researcher and design psychologist Magnus Roos.
Traditionally, cancer research has focused on medical aspects, which is logical. But a meta-analysis of psychosocial factors that influence cancer shows that personality traits and coping strategies, are related to a number of cancer outcomes such as: the stress brought about by diagnosis, treatment side effects, emotional distress, cancer’s impact on daily life, depression and so on. The main challenge will be to support clinicians in identifying vulnerable individuals who are likely to have poorer coping strategies and therefore, poorer outcomes.
Veryday’s Connected Health team is helping pharma companies thrive on the leading edge of healthcare transformation to deliver better patient experiences today. Together with our clients, we unlock the unmet needs of patients, caregivers, providers and other stakeholders. We create new opportunities based on these needs and enable our clients to deliver more democratized, personalized and collaborative care – available anytime, anywhere.